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connected
Join other families with rare conditions to
share support and collaborate on research.
How it works
The digital space empowering families
Find your peers
Get introduced to those who share your situation from location and culture to patient age, and more. Call or message, 1-on-1 or in groups, using personal privacy settings.
Meet researchers
Get to know academic and industry experts working on rare diseases. Ask questions, share your experiences, and co-design new projects.
Grow advocacy groups
Start, manage, or grow your community with features designed just for you including automatic group moderation, real-time translation, and feed search.
where to start
Rarecomend: our resource library
We're building on our Chief Rare Mom's viral rare disease and disability resource guide to introduce a brand new interface, crowdsourcing, and more features to come.
